But for my neck

You know that saying, “I’d lose my head if it wasn’t attached?”

Yesterday started with me getting up early to shower so I could get the kids fed and dressed in time to get Corin to Mother’s Day Out by 9 a.m. It was pouring – and I do mean POURING – when I pulled into the parking lot and immediately realized I must have missed a memo. The parking lot was nearly empty. I broke a cardinal rule and left the kids in the car while I sloshed to the door to sheepishly ask the one person in the place what exactly I had missed. Sure enough, no Mother’s Day Out this week, an open house next Tuesday, and then the normal schedule resumes for the school year. I needed to pay a tuition balance, but of course, I hadn’t brought my checkbook in. I sloshed back to the car to get my checkbook, dripped on the patient woman’s desk while I wrote her a check, and sloshed back out to a very disappointed three-year-old.

Of course, the lack of Mother’s Day Out meant Corin would be coming with me to Lina’s physical therapy appointment. Thankfully, it wasn’t a hard sell. They have toys.

We showed up on time (okay, 5 minutes late) and waited quite some time before the therapist came out and said, “Remember how I asked you last time if you had a recurring appointment on the schedule and you said you did?” Yeah. Oops. Thankfully, the kind therapist was able to see us, and we’re now on her schedule for the foreseeable future. Corin enjoyed himself and Lina had her best appointment so far.

By the time therapy was over and I’d fed the baby, it was well into lunchtime. We headed to the Panera just around the corner.  Corin likes the food there, and it’s healthier than some options, but the logistics are a challenge. Maybe there’s a way to gracefully manage two children while ordering at the register, locating an empty table mid-lunch rush, finding somewhere to stash the baby carrier and then ferrying two meals and a baby back to the table. If so, I haven’t found it. I wish I’d gotten the names of the kind strangers who stepped in to help, because they deserve public thanks.

The brightest spot all morning was the thought that the cleaning lady was at that very moment polishing things to a shine at home. That is, until I realized upon our return that I had completely forgotten to let her know we wouldn’t be home. The key was under the mat, but of course she didn’t feel comfortable barging into my home without instruction. I listened to the answering machine message – “No one is answering, so I’m leaving. I can come next Friday, if you want.” – and nearly cried.

The final chapter came at around 5 p.m., when I got a call from the agent who sold us our new health insurance policy, which it turns out had been voided for nonpayment, despite our having filled out all the paperwork for autodraft payments. (Thankfully, it’s all cleared up: a brief phone call this morning and the customer rep freely admitted it wasn’t our fault, waived the reinstatement fee, and promised all claims will be paid.)

There are just some days where you say a prayer of thanks you made it to the end. I gotta tell you, that was not my A game. But it’s also true that this narrative leaves a lot out. It doesn’t communicate how many times Corin’s commentary made me laugh, or the pleasure of sharing his first Dairy Queen blizzard, or the way Lina’s face lights up at brother’s antics, or the goofy way she pulls her foot up past her ear in the high chair… There is magic. It’s happening, even as I’m facing the truth that this once-organized and relatively together adult really would lose her head if it wasn’t attached.

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Carrot loaf was a HIT

That sweet face – 10 months

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(We’re overdue by five days, and the pictures were taken in Mimi’s kitchen instead of the usual location. But 10 months she is, so here goes…)

Eline at 10 months:

  • Weighs about 17 lbs. and is wearing clothes for 6 – 12 months and size 3 diapers
  • Is on her fourth week of pretty severe feeding issues, finishing bottles only in her sleep and often refusing half or more of the bottle during waking feedings. The Vandy feeding therapist suspects reflux, and we have a call in to the pediatrician.
  • Is taking all-formula bottles and seems to enjoy solid foods, including small bits of finger foods like fresh fruits, baby puffs and bread. I usually have to feed them to her, but she is able to do some self-feeding.
  • Has started refusing to allow anyone but mom, dad or brother to hold, touch and interact with her. She may smile at other family members or strangers if mom or dad is holding her and she is well-rested and in a good mood, but if she’s tired, just a look at a face other than ours will set her wailing. And if anyone but us tries to hold her, watch out. The trauma escalates until mom or dad takes her back and calms her down again.
  • Sits unassisted for minutes at a time, playing with toys and turning to noises, although she tends to fuss about how much work it takes.
  • Loves to play on her tummy and can spin herself easily in any direction and wiggle forward a bit. Wants to crawl and tries to lift her torso but doesn’t yet have the coordination to get on all fours.
  • Babbles constantly, blowing LOTS of raspberries, making guttural sounds and now using some consonants (mostly “da-da-da” and the occasional “ba” or “ga”).
  • Is a good sleeper at home, in her familiar environment – napping 30 minutes to an hour in the morning and 2 – 3 hours in the afternoon, and sleeping at night from around 6:30 to 7:30 p.m. to 6 – 6:30 a.m., with us feeding her asleep twice in the evening. She does not nap well anywhere other than her own crib but does seem to do okay at night.
  • Enjoys being cuddled, played with and read to and is a happy, good-natured baby. She smiles all the time in response to us and giggles some when she is being tickled and played with. She adores her brother and has even started smiling at the dog lately. She really absorbs a lot about her environment and notices so much of what goes on around her.
  • Loves to play with her toes and chews constantly on anything she can reach. She still acts like she’s teething, but nothing new has broken through.

I can’t believe my baby will be one in less than two months! There are real challenges day-to-day, as we deal with Lina’s quirks and needs. But there are also times when I’m glad that I get to enjoy my littlest being little for a while longer.

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A sudden good-bye

Last week did not end in “hallelujah,” after all. Instead, we learned Friday that we had unexpectedly lost Jon’s sweet grandma, Virginia (Ginnie) Geary.

I missed out during childhood on the experience of doting grandparents who lived nearby. When Jon and I got married, I felt like I’d won the grandparent jackpot. His Grandma and Grandpa Geary took me in as their own with such warmth and love, and I felt so lucky to be close enough to see them often. Since Friday, the memory reel has played almost constantly, of holidays and family vacations in Gatlinburg, of weekend visits, shopping trips, wedding days, Sabbath dinners, meeting new great-grandbabies and all the moments over the past 11-plus years that made Grandma Geary so very, very dear. I know Jon has an even longer memory reel playing. She was kind and generous, gentle and loving, always looking for the very best in people, a lover of beautiful things, a great shopper, a fantastic cook, a world traveler, a beautiful dresser, a good sport who loved to play games and laugh, and a much-loved wife, mother, grandmother, great-grandmother and friend. The whole family is hurting and placing such hope in the promise of a day when we can be with her again.

For those who knew Ginnie Geary, a memorial service is planned for 4 p.m. on July 27 in Calhoun, Ga. If you loved her, as so many did, please join us in remembering the remarkable woman she was.

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My college graduation, 2002

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The moms and Grandma Geary at our wedding, 2002

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Grandma and Grandpa at our baby shower for Corin, 2010

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Meeting Corin, 2010

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Corin’s baby dedication, 2010

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Corin’s first birthday, 2011

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Savannah, 2011

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2011

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Thanksgiving 2011

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Meeting Eline, 2012

I swallow a lump in my throat as I look at what I know now is my last photo of Grandma Geary. I wish I’d taken more. There is so much I never captured. I wish my children could grow up knowing her. Please God, let us see her again soon.

In with a whimper, out with a hallelujah

What a week.

Jon has been away for work since 4 a.m. Monday. (Insert whimper.) He’ll be home tomorrow afternoon, and I would describe my status as hanging on by my fingernails. I owe an enormous thank you to my mother, who has made time in her busy schedule to take my son to Vacation Bible School three days this week while I ferry Lina to various appointments. It has made my life much easier than it could have been.

Lina went to Vandy Wednesday to get her loaner hearing aids. They were booked out so far for this appointment that by the time we got in, she had already outgrown one of the custom in-ear pieces. (The ear molds are obviously not loaner, but thankfully, Tennessee Early Intervention is paying for them, as they are not covered by insurance.) They took new ear impressions, sent us home with the one hearing aid that fit, and we’ll go back in 2-3 weeks to get everything set up for the full set of aids with updated molds (which will last for a couple months, until she again outgrows the ear pieces). However, since we’ve been home, I have been entirely unable to keep the hearing aid on my tiny girl. The loaner aid is bigger than newer models, and her little ear just doesn’t hold it in place. Another call to the audiologist this morning, and I’ve learned that wig/toupee tape can do the trick. We’ve ordered some next-day, so I’ll let you know how that goes. Let’s hope it works, because I’ve already barely rescued the thing from the dog once so far.

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Pre-hearing aid

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Post-hearing aid

This morning was Lina’s first physical therapy appointment. It was… not her best showing. She was exhausted, wailed the entire time and wanted nothing to do with anyone but mommy. But the good news is PT right now is really more for me, anyway. The therapist was able to identify some areas to focus on and suggest specific activities to do at home, which is pretty much the point. Lina loves to stand and extend and does not love to sit or move into a crawling position. She might like to walk before she crawls, which is not great, developmentally. So, we will be focusing on sitting and transferring to a crawling position.

I have a few new additions this week to my collection of parenting war stories. There’s the one about a three-year-old who decided, just as we were getting ready to walk out the door for Vacation Bible School, to smear himself, his clothes and the entire bathroom with bath soap. Or the one about the baby who rolled off our bed…again. (I know, I know. Please don’t call DCS on me.) Or the tale of a reliably potty-trained son who has decided to start intentionally peeing – and pooping, as of today – in his bed during nap time. I poured out my latest tale of woe to my dad today, and he suggested that we may be dealing with some jealousy issues as Lina’s needs begin to absorb more time and attention. I think he’s probably right. Figuring out how to deal with this is very much a work in progress.

There is also much to be thankful for this week. My kids are healthy and really an awful lot of fun. Corin and I have had funny conversations and good times reading stories and snuggling. He is so cuddly now, which I am making a point to appreciate while it lasts. Lina is making strides in her speech and motor skills almost daily, and her smiles truly light up my days. We have family coming into town tomorrow, and it should be a really fun weekend.

So, to finish out our week: Tomorrow is speech therapy at Vanderbilt, and then daddy will be home. Hallelujah.

I submit this

Jon and I celebrated our 11th wedding anniversary a couple weeks ago. I use the term “celebrated” loosely, because we planned nothing ahead of time and barely managed to catch a movie with friends (the very romantic Star Trek, if you’re curious) before heading straight back to pick up the kids. Jon says he’d much prefer the blogosphere to believe it was roses and candy and the French Riviera, but the truth is the truth. At least we have last year’s return to our honeymoon location to look back on.

In any case, I feel like 11 years qualifies us to have a few opinions on marriage. I promise you, we do not have this thing all figured out. We have our share of arguments and snappishness, the usual frustrations and annoyances that make up daily life with another person. There will doubtless be plenty more challenges ahead. But we’re 11 years and two kids in, and we’ve faced our share of hard times. We’re still in love and more grateful than ever to be sharing this life together. I PetalTossB&Wknew I was marrying a good man, but I have been consistently amazed by the remarkable husband and father Jon is.

But to the point: I say all that to establish my qualification to voice an opinion about Christian marriage. Take it for what it’s worth.

I have in recent years (read: since the advent of Facebook) seen links to various articles and blog entries on the topic of Christian marriage. Many have some helpful, if rather basic, marriage advice. But invariably, they seem to have one thing in common: They all name the principle of wifely submission as key to a successful marriage. They generally point to at least one of two passages. They may use Colossians 3:18, where Paul advises wives to “submit yourselves to your husbands, as is fitting in the Lord.”* Most do go on to mention the following verse, which commands husbands to “love your wives and do not be harsh with them.” However, rarely do these articles mention that following the next two verses, which address parent-child relationships, is Colossians 3:22, which reads: “Slaves, obey your earthly masters in everything…” And a few verses later, there is Colossians 4:1: “Masters, provide your slaves with what is right and fair, because you know that you also have a Master in heaven.” These passages we acknowledge as no longer culturally relevant. The second, more commonly quoted, passage is Ephesians 5:21-33, which reads in part: “Wives, submit yourselves to your own husbands as you do to the Lord. For the husband is the head of the wife as Christ is the head of the church, his body, of which he is the Savior… Husbands, love your wives, just as Christ loved the church and gave himself up for her to make her holy…” But again, these marriage articles may fail to mention the closing of this chapter: “This is a profound mystery—but I am talking about Christ and the church. However, each one of you also must love his wife as he loves himself, and the wife must respect her husband.”

Most of these marriage articles make good points about the self-sacrifice that is necessary for any marriage. And they are clear that both husband and wife are to serve each other in love. But they take it a step further, arguing that modern, feminist culture has damaged the biblical model of marriage, which establishes the husband as head of the family, the provider and spiritual leader, with his wife standing behind him in a support role, managing the household and family life. Growing up, I heard it frequently suggested that husbands and wives should always seek compromise, but when they were truly unable to settle a disagreement, the wife should submit to the husband’s will.

You know what my response is? Baloney.

I know I’m straying into controversial territory for some people. Many of you may ascribe to the picture of marriage presented above, and if it has worked well for you, then by all means, continue. Some of you have likely been at this much longer than 11 years! I do not intend to tell anyone else how to run their homes. But I do take issue with a default Christian perspective on marriage that is, in my opinion, less than helpful.

First, let’s examine the cultural context of the passages quoted above. Paul paints a picture of a godly marriage, and it certainly contains a loving husband as head of the household, with a submissive and respectful wife supporting him. But let’s also acknowledge that this advice was given at a time and in a culture when women had few rights and were treated as property to be transferred from father to husband at the time of marriage. Paul also advised women to stay silent in church, saving their questions to ask their husbands at home. (I Corinthians 14:34-35) He specifically forbids women from teaching men, pointing to the creation of Adam before Eve and Eve’s first fall to temptation, and suggests that women are saved through childbearing. (I Timothy 2:11-15) I think I can safely suggest that most of us have a different understanding today of the roles and rights of women. Perhaps we can agree that a Christian marriage today should look a bit different than marriage at the time Paul was writing?

I also take issue with the idea that “secular, feminist culture” is destroying the biblical model of marriage. I won’t wade into the truly treacherous waters of dissecting what exactly constitutes “biblical marriage,” but I will point to research that indicates divorce rates in the U.S. are 50 percent lower in homes where women earn half the income and men do half the housework.[1] It simply does not hold up that by adhering to more equal gender roles, husbands and wives jeopardize their marriages.

There are really two related issues here: leadership  and domain. At least one blog I read recently connected the idea of submission to the husband’s leadership and the home as primarily the woman’s domain. Both ideas seem problematic to me.

On a personal level, this may seem hypocritical. Jon works full time, and I left my job in 2012 to become a stay-at-home mom. I love being a full-time mom. I wanted to do this, and it currently works well for our family. But here’s the thing: I approach my role as a job. I don’t mean to say the work is drudgery (although, like any job, it certainly can be). What I mean is that Jon and I both have our work during the day, and then we share what needs to be done in the time that remains. He does not clock out of his job and expect to rest while I continue to work around the house. Some of our division of labor looks pretty traditional, some doesn’t. But neither of us views the home as mainly my domain. (He would take the suggestion as an insult.)

Even more important is the issue of leadership. When it comes to decision making, Jon and I are partners who give and expect equal voice. If we face major disagreements, we work until we find a solution. In a true impasse (which has been very rare), sometimes I give, sometimes he does. We’re both terribly stubborn, so it can take a while, but we always get there. We together set the spiritual tone for our family and together establish our family’s values and beliefs. We lead our family as a team.

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Yes, that really is us, circa 1998.

I don’t intend to brag or suggest that everyone should do what we do. Instead, I am suggesting that it would be a shame if we felt our Christian faith required something other than this happy, workable, equitable arrangement. Do we really want to suggest to single or newly-married women that they should have less of a voice in their marriages? Do we want to suggest to young men that being a godly husband and spiritual leader means asking their wives to take a back seat? Proponents of this “Christian marriage” model seem to suggest that these are not unequal, but different roles. I absolutely agree that men and women have different strengths and needs and will have different roles in the family. But the specific makeup of a family is very individual, and I do not believe we should emphasize to women the principle of submission or suggest to men that they assume a “head of the household” role over the wife and children.

So what should a Christian marriage look like? I submit there are many biblical principles that apply across time and culture and work in families as different as the individuals who comprise them. They include: willing self-sacrifice, service, kindess, purity, faithfulness, commitment, hard work, shared faith, respect, discipline, laughter, prayer and, above all, LOVE.

My marriage advice boils down to this: Find someone who shares the things that really matter to you, build an equal partnership on core biblical principles like the ones above, and commit unequivocally to it. The rest is just one big adventure.

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[1] Lynn Price Cook, “‘Doing’ Gender in Context: Household Bargaining and Risk of Divorce in Germany and the United States,” American Journal of Sociology 112, no. 2 (2006): 442-72, as quoted in Sheryl Sandberg’s Lean In, Alfred A. Knopf, 2013.  

*All biblical quotes are from the New International Version.

Through this lens

It’s been a rough day. We’ve had a few of those lately, as you may have gleaned from recent posts. My nine-month-old has slept just over an hour since 6 a.m. It is now 5:30 p.m. There is more to the woe-is-me story line, but here’s the thing: I snapped some photos this morning of Lina, and in sorting through them, I have decided this is the lens I will use to view today.

Today she is wearing an outfit I bought the day after we found out we were having a girl. There was a time when those cute little outfits hanging in her closet brought me pain: the pain of hopeful expectations that seemed to have been dashed. But today, I am so grateful to look at these photos and see only my sweet baby girl in the strawberry top and ruffled bloomers that charmed me a year ago. I see the perfectly-matching headband bought for her by a wonderful friend. I see a big brother in love with his little sister.

Yes, their shenanigans are multiplying my gray hairs by the hour. These photos were taken around a dog and two other children wandering in and out of the frame, and the eyes that already looked tired in the pictures are much more tired now. But there is an awful lot of love and joy here, underlying and running right through all the chaos and exhaustion. Through today’s camera lens, I see how far we’ve come, and I’m ready to soldier on.

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Catching up

We’ve had a lot going on over here. I say that a lot, don’t I?

I have a back log of photos to share, of our first canoe trip with both kids, pool days and smiley Lina. Between the normal errands, summer outings and medical and therapy appointments, we’re on the go a lot. Our weekends have been full, as well, which has made for a couple of tired kiddos. We’ve been having fun, but I also find myself really valuing our increasingly-rare quiet days at home.

Corin started a Mother’s Day Out program last week. He goes from 9 a.m. to 2 p.m. on Thursdays to the little Baptist church five minutes up the road, and he loves it. I get an impressive amount done in that time. Thus this blog post.

We got a new-to-us couch this week. This bears mention, because the cheap Rooms to Go couches we’ve been abusing for 10 years had become such a bane to our existence. Between the dog and the kids (but mostly the dog), we cannot in good conscience even donate them to Goodwill. They will be going out on the curb as soon as I can arrange trash pick-up. Jon suggested a bonfire. Amazingly, Tennyson (the dog) seems mostly content with staying off the new couch. Perhaps it was the lecture Jon gave him in which he threatened, with little need for exaggeration, that if Tennyson in any way damaged the new couch, I was likely to send him out the front door with no hope of return admittance.

We’ve had some challenges, as well. The a/c at the house is not working properly, and by the end of the day, it hits at least 80 degrees in here. The repairman has not returned our call. The insomnia I experienced for quiet a while after Corin’s birth has returned, and I am running on too little sleep most of the time. And Lina is on day 10 of a hunger strike, which has me pretty concerned. She only finishes bottles if she’s asleep, and sometimes not then. She takes little to nothing at her waking feedings. We’re used to ebbs and flows in her feedings, but this is bad, even by Lina standards. I have a suspicion it may be thyroid-related. She was due for thyroid blood work this week, anyway. I wanted to get it done at Vanderbilt, but given my growing concern, I ran her up to the pediatrician yesterday to get it done sooner. This was a mistake. It took three nurses, three separate sticks and a nightmarish amount of digging before they found a vein on my pitiful, screaming baby. We were all traumatized. I have a whole new respect for the lab tech at Vandy who a few months ago drew blood with one simple stick and minimal screaming.

Speaking of the baby, it’s time to cajole her into downing her new standard of three ounces. Wish me luck.

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Kiddie Pool with Claire and Cousin Benjamin

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Stones River Canoe Trip with Friends

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First Day of Mother’s Day Out

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More Pool Time

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Smiley Lina!

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That sweet face – 9 months

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Eline at 9 months:

  • Has experienced a phase of rapid development and growth over the past couple weeks, with strides in both fine motor (rake grasp, manipulating toys with both hands, passing objects from hand to hand) and gross motor (sitting unassisted for 10 seconds, rotating her trunk toward people/sounds, arm strength, balance)
  • Smiles more frequently than ever and cackles often, with occasional outbursts of actual laughter
  • Is a bit of a mama’s girl, especially when hungry or tired, and is also very attached to daddy and brother
  • Has grown into 6 – 9 or 6 – 12 month clothes and can wear either size 2 or 3 diapers
  • Really enjoys eating purees when she is well-rested but does not have much patience for the process when she is tired. Her favorites so far are prunes, sweet potato and peas.
  • Is fascinated with her feet and loves to wave them around, hold onto them and even suck on her toes
  • Chews on everything and drools buckets, thanks to what appears to be a molar on its way in
  • Generally takes a 30-minute to 1-hour nap in the morning around 9 a.m. and a 3-plus hour nap in the afternoon starting around 12:30. Goes to bed around 7 – 7:30 p.m., feeds once more around 11 p.m., then sleeps until 6 a.m. Still sucks her fingers and seems to like her lamb lovey.
  • Has almost completely transitioned to straight formula. (A post on the end of pumping is forthcoming, I’m sure.) Still does 5 feedings a day but is taking more volume at most of her feedings and seems almost ready to drop the late-night bottle.
  • Speaks in mostly vowel sounds but has started producing some occasional consonants, along with the well-loved raspberries and buzzing and guttural sounds. The volume has gone way up! She can be loud when she really gets going.
  • Loves absolutely nothing better in the world than to have a family member cuddle, love on and talk to her.

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Physical therapy – or, she’s going to rock this, too

Lina had her PT evaluation this morning with a lovely woman named Abby at Hendersonville Medical Center’s rehab facility. Thankfully, this is a 17-minute drive from our house, and I am able to park a few steps from the entrance. Much simpler than a Vandy appointment, where it sometimes feels as if parking alone takes 17 minutes. Also, this place is around the corner from Target, likely to the detriment of the family budget.

Lina was a little show-off at her evaluation. She sat unsupported on the table for 10-plus seconds at a time, manipulated toys with both hands, smiled and “talked” to the therapist, and generally impressed her with her skills. This evaluation did not involve a quantitive scoring system like the speech evaluation, but the therapist was very positive and felt like Lina was doing so well. She said Lina’s muscle tone was not that low, and she did not feel there were any major delays to be concerned about. She felt that with weekly therapy, Lina will continue to make fantastic progress. (I was a little surprised at her recommendation for weekly vs. bi-weekly, but it sounded like that’s her standard recommendation. I may ask her about it at Lina’s first visit.) After the evaluation, Abby took Lina out to schmooze with the other therapists for a minute, and my girl cooed  and waved her feet around as if to make sure everyone saw her stylish sandals.

While Lina and I were busy charming Hendersonville’s PT staff, Grandma was watching Corin and Benjamin, who is staying with the grandparents for a few days. The boys had a blast playing in the sand box, chasing each other around the house, and yes, occasionally arguing over toys. I love that they play together so well, and I can’t watch them without imaging this relationship over the coming years. It always makes me smile.

Summer has been slow to arrive this year in Middle Tennessee. Temperatures are finally climbing, though, and Corin and Lina had the chance on Saturday to go to the pool for the first time this season. Uncle Justin and Auntie Katie have a lovely pool at their apartment complex, and Corin was beside himself with excitement about the outing. Lina finally got to wear her perfect polka-dot suit, and Corin had a blast kicking his way around the pool in his “puddle jumper” floatie. The water was still cool, but Lina was very happy to splash with Auntie Katie. Corin’s teeth were chattering and his lips were blue before he was willing to consider getting out of the pool.

Thanks to Uncle Justin for snapping a photo of Lina’s first dip while I was tied up back at the apartment.

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Happy summer, everyone!

Hearing and speech – or, she’s going to rock this

Need to know where the Vanderbilt Bill Wilkerson Center is? Trying to find an office in the Vandy Children’s Doctors’ Office Tower? Wondering where to park in the South or East Garage? I am now the girl to ask.

In the last week, Lina has seen the audiologist about hearing aids, followed immediately by her first visit to the pediatric endocrinologist for management of her hypothyroidism, followed yesterday by a visit to the pediatric speech-language pathology clinic for speech therapy evaluation. At least Vanderbilt appointments no longer involve mild panic over finding my way to the proper spot in that mini-metropolis.

So, here comes another bulleted list of appointment highlights. Probably not the most interesting reading, but full disclosure: this is likely to be a recurring feature.

  • The hearing aid decision was more complicated than the ENT led me to believe. He seemed to indicate the next step would be a bone-anchored hearing aid, but in talking with the audiologist, there was also a strong case to be made for trying traditional (and less expensive) behind-the-ear aids. We talked over the pros and cons, and I opted for a loaner set of behind-the-ear aids. We will pay for the custom in-ear pieces that attach to the aids, but it seemed to make sense to hold off on buying her own full set, as there is a chance the standard aids will not work well with Lina’s tiny ear canals. The loaners will be available to us for up to three months. Besides helping us determine if they even work for her, it will also buy us time until her next visit with the ENT, when we can hopefully get more information about longer-term solutions. The big question is how long it will be before Lina’s ear canals are big enough for tubes, which we hope may make the hearing aids unnecessary long-term. (This is by no means guaranteed.)
  • The endocrinologist visit was pretty straight-forward. Lina’s thyroid production is only slightly low; the doctor said that in some cases with Down syndrome, young babies with low numbers may actually outgrow the problem. She suggested that if things still look pretty good by the time she turns three, we may be able to try taking her off the medication. We have thankfully been able to switch from a liquid medication that had to be compounded at a special pharmacy every eight days to a much more manageable tablet I crush and give her with a little water.
  • The speech evaluation was very interesting to me. I loved the therapist we met with (who is unfortunately leaving to get married in a month), and she was very encouraging. This evaluation was the first time anyone had given us quantitative information about Lina’s development. Based on information I provided and observing Lina’s interaction with people and toys, the therapist was able to give her a numerical score for several areas, including hearing, communication and cognitive. Lina scored on the low end of the normal range for cognitive and in the mild delay range on everything else. Her milestones are on par with a typically-developing 4-month-old. (That part was a little hard to hear.) The therapist was very pleased with the progress she has made thus far on her own and felt that with speech therapy (twice monthly for now), she could continue to make steady progress. She said that therapy should be able to help avoid a tendency for developmental gaps to widen after kids turn one. She felt Lina’s current progress has been helped a lot by being close to me all day, in a relatively quiet home environment with a lot of one-on-one interaction. I hadn’t thought too much about physical proximity and background noise, but it makes sense that those things would be factors for a child with hearing loss.

Running around to so many appointments has been exhausting, but I continue to be thankful that we have good resources for managing the challenges Lina is facing. I feel really good about the experts on Team Lina, and I like that we’re being proactive with therapy. She’s going to rock at this.  

And from the last few days, for fun:

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