That sweet face – 9 months

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Eline at 9 months:

  • Has experienced a phase of rapid development and growth over the past couple weeks, with strides in both fine motor (rake grasp, manipulating toys with both hands, passing objects from hand to hand) and gross motor (sitting unassisted for 10 seconds, rotating her trunk toward people/sounds, arm strength, balance)
  • Smiles more frequently than ever and cackles often, with occasional outbursts of actual laughter
  • Is a bit of a mama’s girl, especially when hungry or tired, and is also very attached to daddy and brother
  • Has grown into 6 – 9 or 6 – 12 month clothes and can wear either size 2 or 3 diapers
  • Really enjoys eating purees when she is well-rested but does not have much patience for the process when she is tired. Her favorites so far are prunes, sweet potato and peas.
  • Is fascinated with her feet and loves to wave them around, hold onto them and even suck on her toes
  • Chews on everything and drools buckets, thanks to what appears to be a molar on its way in
  • Generally takes a 30-minute to 1-hour nap in the morning around 9 a.m. and a 3-plus hour nap in the afternoon starting around 12:30. Goes to bed around 7 – 7:30 p.m., feeds once more around 11 p.m., then sleeps until 6 a.m. Still sucks her fingers and seems to like her lamb lovey.
  • Has almost completely transitioned to straight formula. (A post on the end of pumping is forthcoming, I’m sure.) Still does 5 feedings a day but is taking more volume at most of her feedings and seems almost ready to drop the late-night bottle.
  • Speaks in mostly vowel sounds but has started producing some occasional consonants, along with the well-loved raspberries and buzzing and guttural sounds. The volume has gone way up! She can be loud when she really gets going.
  • Loves absolutely nothing better in the world than to have a family member cuddle, love on and talk to her.

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The best medicine

There is little doubt in my mind that having to wait longer for milestones means we appreciate them that much more when they come.

Turns out Corin’s monkey antics were just the thing to bring on Lina’s first real laughs. The video is dark and wobbly, and we didn’t catch the first round of laughs, which were even better. But I could watch it over and over, just the same.

Corin was terribly pleased at his success, and I even got my own little giggles this morning, tickling her neck with my kisses.

These are the moments I live for.

That sweet face – 8 months

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Eline at 8 months:

  • Weighs 15 1/2 pounds and is around the 67th percentile for weight and 65th for height on the Down syndrome growth charts
  • Is wearing a combination of 3-6 and 6-9 month clothes
  • Is increasingly vocal, with lots of vowel sounds, spitting and the occasional guttural “g” or buzzing “b” sound
  • Pays lots of attention to her surroundings, especially when brother is running around the room, and is easily distracted by activity or interesting visuals
  • Startles at loud noises and sympathy cries with other babies/children
  • Loves to be held, tickled, talked to, played with, read to and snuggled and often responds to interaction with big smiles, even from across the room
  • Has tolerated purees relatively well – oat cereal, banana, avocado, prunes and apples so far, with prunes being the clear favorite – and is learning to take bites off the spoon
  • Takes 5 oz. bottles of mixed formula/breast milk five times a day at around 7 a.m., 11-11:30 a.m., 3:30-4:00 p.m., 7 p.m. and 11 p.m.
  • Usually takes a shorter nap in the morning around 9 a.m. and a much longer nap in the afternoon starting around 12:30 – 1 p.m.
  • Goes to bed around 7 p.m. and sleeps until anywhere from 5:30 – 7 a.m. She will usually talk to herself and maybe doze a bit until we get her up around 7 a.m. Sleeps on her tummy and sucks her left-hand first and middle fingers. Usually gets a story and a few minutes of rocking and is then laid down sleepy but awake in her crib to put herself to sleep. I’ve also started giving her a little bunny lovey, which she seems to like to hold as she goes to sleep.
  • Loves to play with her feet, kick her legs high into the air and explore with her toes
  • Is still working on learning to sit unsupported and is not yet ready to crawl
  • Has her first tooth on the bottom right most of the way in and has just cut her bottom left tooth
  • Is on week two of thyroid medication, which has proven to be a hassle (The liquid medication has to be filled by a compounding pharmacy and is stable for only 8 days.)
  • Has appointments at Vanderbilt on the 29th with an endocrinologist for the hypothyroidism and an audiologist for her hearing aid evaluation

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Babies, birthdays and big milestones

In addition to our high school reunion this past weekend, we were able to stop and visit my brother and sister-in-law, where I met my new nephew for the first time. I’m already missing sweet baby Luke.

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We also got to celebrate Corin’s birthday again, this time with Jon’s side of the family. Corin had his cake Saturday night, his Mimi made a big birthday brunch on Sunday, and then he opened gifts. (One of his gifts, an awesome Radio Flyer wagon, was already in commission outdoors by then.)

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He really hated the food.

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The doctor kit is a huge hit. We passed a college the other day, and I explained to Corin that it’s a school where people learn how to be things like lawyers, musicians, business people or doctors. “But,” he says, “I am already a doctor.”

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This exciting box…

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…turned out to be this VERY exciting gift.

It was a fun and very full weekend. Lina napped for seven hours a day the first three days we were home. I think she has finally recovered.

Which led me today to decide it was time to make up a batch of homemade oat cereal and finally wade into the waters of solid foods with baby girl. Given the difficulties we have had with feedings in her first six months, and knowing this can be a challenge area with DS, I wasn’t sure what to expect for our first go. As it turns out, she finished the small bowl I’d mixed up and actually seemed to enjoy it. We may have a challenge with that tongue wanting to push the food back out, but I’d say that today, Lina rocked this milestone.

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What? Do I have something on my face?

Happy birthday, firstborn

March 18 three years ago brought me this scrawny, goopy, cone-headed bundle of wonder:

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That day, I met my firstborn, my son, my introduction to motherhood and a love so much bigger than words.

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As I watch my 3-year-old race around the house and listen to him chatter about his latest imaginary adventures, it’s hard to remember that tiny body I cradled in the hours after his birth: A stranger, so new, so alien, so helpless. How much has changed in three years, for him and for me.

Corin’s birthday weekend began with an awesome afternoon playing with his cousin Benjamin, who was staying with Grandma and Grandpa. Then yesterday, I summoned my energy reserves and threw a Curious George party, because I’ve learned that nothing compares to seeing my little boy having fun. He did, and it was so worth it. All these little ones are growing up so very fast. They’re learning to interact and crack each other up, and it is awesome.

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Our best attempt at a family photo

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The birthday boy making use today of one of Grandma and Grandpa’s gifts

Look closely at that family photo, and you’ll see two very tired adults who are navigating our share of stressful times on less sleep than we’d like, a wound-up little boy who had banged his head on the edge of his bed hours before the party, and a baby who was rapidly reaching the must-get-to-bed-now point. But, it is our family. That was not always a given for us. The day of my son’s birth will forever be the day we moved from hopes and dreams to reality. Life is hard and messy. There is no avoiding that. But both of my children are utter miracles. Today is Corin’s day, the day we celebrate the gift he is to our family. I cannot imagine my life without him, and I am infinitely grateful to a good God that I do not have to. My heart really does beat in that sweet, shy, funny, smart, energetic, quietly stubborn little guy’s body, and there’s nothing for it but to keep loving and praying like crazy.

Happy birthday, son of mine. How glad I am you are here.

That sweet face – 6 months

Wednesday was Lina’s half birthday.

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Eline at 6 months:

  • Weighs close to 14 pounds
  • Easily rolls back and forth to stomach and back, gets her knees up in a crawling motion, bears weight on her feet and sits for longer periods with support
  • Generally loves to be held, cuddled, talked to and played with and will usually give big smiles for activities like bicycle legs, clapping hands, being lifted up in the “flying baby” position, or being pulled by her hands to standing
  • Enjoys her play mat or bouncy seat for periods of time
  • Has started paying a lot more attention to big brother and will follow him around the room with her eyes and will crane towards his (usually noisy) location
  • Can hold lightweight toys for increasing periods and manipulate them with a little more precision
  • Gets 5 oz. (occasionally 5 1/2) of formula/breast milk five times a day – generally about 4 hours apart – but quality of feedings is inconsistent, and she is easily distracted by her environment
  •  Has had an inconsistent daytime routine but seems to possibly be settling down to two naps in her crib at around 10 a.m. and 1:30 p.m., with the afternoon nap being quite a bit longer
  • Goes to bed for the night around 6:30 or 7 p.m. and sleeps 11 – 12 hours with one or two “dream feedings” in the evening (also tends to wake around 5:30 a.m. and chatter a bit before going back to sleep)
  • Starts the night in her crib but still goes in the cradle in our room when we go to bed
  • Is struggling with constipation issues, which I understand are pretty common with Down syndrome
  • Has hated her baths, but these tips have helped a great deal: less water in the tub, and a warm, wet hand towel draped over her torso to provide a sense of security
  • Wears 3-6 month clothes and size 1 shoes for her teeny, tiny feet

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Half a year with our little girl… I am frequently startled by how quickly the time is going. Jon likes to tell people Lina is a constant source of pride, and it’s true. She is healthy and doing so well, and her smiles light up our lives. We feel incredibly blessed.

A friend recently posted a link to this video, and I have taken the message to heart. Lina has done so well, and we are so pleased to have not yet faced any real delays in her development. But I realized that often, rather that simply living that gratitude and joy, I am at the same time steeling myself against future challenges. I don’t want to live life with Lina that way. I don’t want to live LIFE that way. Jesus asked, “Who of you by worrying can add a single hour to his life?” I’ve been making a conscious effort to let go of worry for the future. Who knows what tomorrow holds, for Lina or for any of us? She is beautiful and smells of sweet baby. She has perfectly chubby rolls and fuzzy blonde hair, a sweet, happy voice and is learning and growing every day. I am content.

That sweet face – 4 months

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Eline at 4 months

  • Weighs a little over 12 lbs. and is outgrowing a few of her 0-3 month outfits
  • Smiles a lot more (she stares and grins at lights and brightly-lit windows!), responds enthusiastically to anyone who gets in her face, locks eye contact for extended amounts of time, and loves to be tickled and cuddled
  • Sleeps in her cradle and goes to bed for the night at 10 p.m. (with one last “dream feeding” around 11:30) and sleeps until 6:30 or 7 a.m.
  • Naps in her swing for 30 mins. to 2 hours after every feeding
  • Gets 4 1/2 oz. mixed breast milk/formula six times a day but is inconsistent in finishing the bottle and in the amount she leaks during feedings
  • Tracks objects with her eyes, grabs (and tries to chew!) lightweight toys and blankets
  • Still likes to be swaddled for sleep
  • “Talks” a lot, with a wider range of sounds, and seems to try to imitate sounds we make
  • Has made big improvements in head control and can sit propped up for short periods of time
  • Is still a generally easy-going and happy baby

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That sweet face – 3 months

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Eline at three months

  • Smiles more and responds to us with wiggles and a growing variety of coos
  • Can roll onto her side and is working very hard to roll from back to stomach
  • Tolerates tummy time pretty well
  • Sucks her thumb but gets frustrated with not being able to keep it in her mouth for very long
  • Sleeps at least 6 hours at night
  • Takes 4 – 4 1/2 oz. of mixed formula/breast milk six times a day and generally leaks much less than she had been
  • Hates wet or dirty diapers (I have to remember to check her diaper when she gets fussy, since that was never something Corin minded!)
  • Weighs about 11 lb. and is just over 22 in. long
  • Is getting better at holding her head up but is still a little wobbly
  • Can grip small, light toys for short periods
  • Continues to be a generally happy, content and easy-going baby

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Telling us all about it

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It’s hard to talk about what Lina has brought to our lives without wading deep into sap. But truly, she is a joy. Down syndrome is certainly a part of who Lina is, but it no longer feels as if it defines our reality or determines how we view our girl. When strangers admire my baby, I feel pure pride. Jon and I both find we sometimes forget there is anything different about Lina. Sure, we continue to be confronted with the fact that her muscles are not as strong as many babies, and as a result, her smiles are harder-won. I might feel the occasional stab when I hear parents bragging about their babies’ new accomplishments. But Down syndrome is taking its rightful place as just another small part of our family’s story and of who Lina is. It feels good.

That sweet face – 2 months

Eline at two months

  • Awake more during the day, sometimes only dozing between feedings but generally napping at least an hour before the next bottle
  • Nighttime sleep varies quite a bit, anywhere from 4 – 7 hours
  • Continues to make more eye contact and notice more of her surroundings
  • Has given just a few precious, full-on smiles but mostly gives her bright-eyed almost-smiles
  • Generally a good-natured baby who only fusses when she needs something (diaper change, sleep, food)
  • Holds her head and sometimes chest up off the floor for 10-15 seconds and lifts her head and torso off mama’s shoulder for short amounts of time
  • Still loves to be held and cuddled, but also loves the swing, which has made mama’s life much easier (Thank you, Jessica, for the loan!)
  • Takes 4 1/2 to 5 oz. of breast milk or half breast milk/half formula six (occasionally seven) times a day, but sometimes goes very slowly (anywhere from 30 to 50 minutes per feeding) and continues to leak quite a bit at every feeding
  • Is terribly GASSY!
  • Has outgrown many of her newborn size clothes and is beginning to wear her 3 month sizes
  • At her pediatrician appointment today, weighed 9 lb. 4 oz. and was 20 1/2 in. long – small (10th percentile) but right on track for her growth curve

You are my sunshine

Already, I can’t imagine life without her.

How could you not love this sweet face?

Eline at 6 weeks

  • Holding up her head – from tummy – for quite a few seconds at a time
  • Has rolled from stomach to back seven or eight times
  • Making eye contact more frequently, noticing objects, turning to look for the source of noises
  • On the verge of full smiles
  • Loves, loves, loves to be held and cuddled
  • Taking 3 1/2 to 4 oz. of pumped breast milk or part-breast milk/part-formula by bottle 7 times/day
  • Weighs a little over 8 lbs.