Easily one of my favorite days of the year:
We couldn’t have asked for a nicer day for this year’s Buddy Walk. The morning fog cleared mid-day, the sun came out, and temperatures reached the unseasonably warm upper-70s. The event was held this year at Andrew Jackson’s Hermitage home just east of Nashville, and the setting was gorgeous as the fall leaves in Tennessee reach peak colors.
But the truth is that whatever the weather, the Buddy Walk is one of my favorite days of the year. I have written before about how much this day means to us and why. There is just no way to fully explain the experience of walking through a crowd of thousands of people who all share the joy of loving someone with Down syndrome and knowing that we are in this together. This is a group that can move mountains – and will.
Lina was thrilled this year to have a couple sweet classmates from school attend with their families. We are so grateful to all the friends and family who came out to be a part of the walk with us, and to every person who donated. The money raised through this event funds an entire year’s worth of programs for the Down Syndrome Association of Middle Tennessee, including critical education and advocacy work. Every donation, every person who comes out to walk is a part of making this community a better place for people with Down syndrome, and ultimately, for all of us. So thank you, thank you, Team Lina. You showed up, and it means the world.
Last year, I wrote a soliloquy on the Buddy Walk. Definitely read it if you’re not familiar with the Buddy Walk, but this year, I’ll get to the pictures pretty quickly. What you need to know is that this past Saturday, 6,000 people gathered at Centennial Park in downtown Nashville to celebrate the people we love who have Down syndrome. Twenty-four of those were Team Lina, our people who went well out of their way to show their love for Lina and their commitment to helping us make this community the place it needs to be for her. Many of you donated and sent your love over the miles, and you, too, were a part of the day. We ate lunch, relaxed and chatted and participated in what – thanks to numbers that swell every year – was more a crawl than a walk, admiring the hundreds of posters featuring people of all ages who sport that extra chromosome. It’s easily one of my favorite days of the year.
I have a lot on my mind, so bear with me over these next couple posts as I try to bring some order to my thoughts.
First, I want to talk more about the Buddy Walk. We had 33 people walk with Team Lina. I don’t have the words to express how much every one of you means to us. The support is incredible, not just for this moment, but because of what it means for the future, for Lina, for our family, for the thousands of other people in our community who have Down syndrome or love someone who does and for many more who will come after us.
I’ve thought quite a bit the last few days about the question, “Why do we have the Buddy Walk?” The first and most obvious answer is that it serves as a rallying event for fundraising. This one event is the primary fundraiser for an entire year of programs and services. Trust me when I say, those services are really important.
From the moment parents receive a Down syndrome diagnosis for an unborn or newborn baby, they have access to balanced, accurate information and first-hand experiences, delivered by a loving community of people eager to embrace them and their new child. That child and his or her family then continue to have access to seminars, social activities, educational and advocacy resources, concrete help like hot meals delivered to hospital rooms during illness or surgery… Our local organization is also often asked to provide a speaker and educational materials to school groups, community organizations, classes of special education teachers in training, medical professionals… This is the voice of real experience for those who teach, interact with and treat people with Down syndrome. Our organization joins others to advocate at the local, state and national level for public policies important to people with Down syndrome.
All of this requires organization, planning and funds. This year, the Down Syndrome Association of Middle Tennessee raised just over $200,000 in Buddy Walk fundraising. Those funds make a concrete difference in our family’s experience now and in how Lina will be viewed and the opportunities available to her in the future.
But there is more to the Buddy Walk. The family and friends who joined us this year will tell you it’s a huge celebration, so full of joy and camaraderie. This is an open event where we take time every year to shout to our community and the world, “Down syndrome is not sad. It is not something to be apologized for or hidden away. We celebrate loved ones with Down syndrome because of what they bring to our lives and to this community.” It is an opportunity to counter stereotypes, to model open-armed love and acceptance, to mark progress, to share in a powerful community of people who know what this love feels like. It’s joyful, because loving a person with Down syndrome is joyful. Yes, it can be hard. Love is always hard, because it leaves us vulnerable and requires tremendous sacrifice. But every person in that crowd of thousands knows it’s worth it, because real, bone-deep, unselfish love always is.
I dissolved into tears just once during the Buddy Walk. It was at the end of the walk, as Lina stopped to give high fives and hugs to a troupe of cheerleaders with special needs. They adored her, and she gave unquestioning affection in return.
My tears could have been mistaken for ones of fear and pain, and if I’m honest, perhaps there was some of that in there somewhere; but mostly, I cried then and still cry when I remember it because of how perfectly beautiful it was. I know the world can be a very cruel place, but here, there is simple joy in a hug. I thank God for these moments, because my soul will never be the same.
I could spend this post telling you about my day yesterday, when I lost one of my Mother’s Day rings at the Target checkout and had to hunt it down, then realized I’d locked my keys in the car on a day I’d forgotten my cell phone at home, then had to try to comfort a five-year-old who fell and cracked his head on the floor while we waited for daddy…
But really, I’d rather tell you about the Team Lina shirts we’re offering to support the Buddy Walk. The design was hand-drawn, and I think they are terribly fun. Wear your shirts to the Buddy Walk, or support Team Lina in style from afar! They come in a full range of kid and adult sizes and are $18/each, with all proceeds going to our Buddy Walk fundraising efforts.
Yes, we’re all still sweltering in the summer heat, but good news: you can start planning for the Buddy Walk in October, when it will (hopefully) be delightfully cool and clear!
This year’s Nashville Buddy Walk is October 31, and we’re hoping local friends will join us for the event. It is such a fun time, and we’d love for you to experience the acceptance and joy the event offers. And of course, the Buddy Walk raises funds for the Down Syndrome Association of Middle Tennessee, which is a cause very dear to our hearts.
I intended to have lots of fun photos of our first Buddy Walk to share. It turned out, however, that taking the camera out to shoot photos would have risked water damage. So much for that perfect weather we expected… (Friday and Sunday were 65 and sunny, for the record.)
So the only photos from the day are the cell phone variety and… damp. Which is an accurate representation of the event.
We did have a few stretches of slightly drier and warmer weather. The event was celebrity-themed, so each person with Down syndrome got a chance to walk a little red carpet, which was surprisingly touching. The walk itself is a short parade around one end of Nashville’s Centennial Park. Cheerleaders were stationed along the path, and we enjoyed seeing the signs with pictures of so many adorable kiddos.
After the walk, we bravely soldiered through a soggy, chilled picnic lunch as temperatures dropped further. (I was the chicken. After scarfing enough food to stave off starvation, I rushed my unjacketed and half-numb self and the baby to the Jeep, where we waited in relative warmth for the real troopers to get everything packed up.) As soon as we got home, we started a fire in the fireplace and made ourselves some hot chocolate.
Even with the less-than-hospitable weather, we had a lot of fun. I want to say a special thank you to my sweet friend Rebecca, her husband Kirk and their brave kids, who hung in through the wet and chill to show their support. We’re already looking forward to next year, when we can put into use some of the fun ideas we got from other families who know how to do a Buddy Walk right.
And I want to say another thank you to every person who donated. Your contributions have gone to a truly deserving organization that does so much for people with Down syndrome in this community. Because of you, Lina’s first Buddy Walk was a definite success.
Thanks to some very generous people, we have met our Buddy Walk fundraising goal! The walk is tomorrow, and we have raised $1,240 for the Down Syndrome Association of Middle Tennessee. A huge THANK YOU to everyone who contributed. Your donation matters to us and to all the families who benefit.
So tomorrow we experience our first Buddy Walk. The weather should be gorgeous, and we are excited. If you would like to join us, there is still time to register online, or you may register at the event tomorrow. (I believe there may be a charge for day-of registration?) And of course, there is still time for donations for anyone who wants to contribute.
Again, thank you to those of you who supported our first fundraising effort for the DSAMT. It means a great deal to us. Looking forward to sharing pictures of the big day!
The Buddy Walk is fast approaching, and Team Lina T-shirts are now available to anyone who wants them, whether you’ll be walking with us at the event or not. If you do plan to walk with us, order SOON to get them in time!
Adult Ts in snazzy orange
We’re still raising funds for the big event. We are 42% to our goal of $1,200, with 10 days to go. Many thanks to the very generous souls who have donated so far! Click here if you would like to donate or register to join us at the walk.
Sorry to make this blog fundraising central for the next few weeks, but I will be posting regular reminders that we are raising funds online for the 2013 Buddy Walk on October 19. The majority of funds will go toward essential programs for people with Down syndrome and their families here in Middle Tennessee. The Down Syndrome Association of Middle Tennessee is doing great work, and our family directly benefits from their efforts. A small portion of funds will also go to the National Down Syndrome Society, which is doing great work at the national level.
I am in birthday party planning mode this week. In the rare quiet moments, I marvel that in two days, my Lina will be one year old. It doesn’t seem possible. I have a lot to say about that, but I’ll save it for an upcoming post. For now, I’ll just say that she is an amazing gift to our family, and we are so grateful for the support resources our community offers for her and families like ours. These organizations depend on the generosity of people who understand the importance of what they do. Your donation will mean the world to us as we celebrate one year with our sweet girl. THANK YOU for helping us reach our very optimistic fundraising goal!
And local people – come out and walk with us! It’s FREE if you register by September 19. We’re going to have a great time strolling around Centennial Park with a lot of other awesome people. Celebrate with us and be an in-person member of Team Lina!